Stroke Awareness Month

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In 2013, at age 43, actor and musician Rob Benedict suffered a stroke at a fan convention in Toronto, Ontario. Thanks to the quck thinking of his Supernatural co-stars, Richard Speight, Jr., and Misha Collins, he was given medical help and is now doing very well, back to touring with Louden Swain, writing scripts and songs, and performing at Supernatural fan conventions across the world.

He has brought attention to the symptoms of stroke since then.

The acronym to remember is FAST:

Click picture to be taken to Stroke.org’s website. Their copyright. (c)2018

Get the word out

Click picture to be taken to the National Stroke Association.

33/52 – Jimmy Kimmel

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To be honest, I’ve never been a huge fan of Jimmy Kimmel. He’s funny and he tells intelligent jokes. He’s good at political humor, and satire. He can also be biting. I think it was a chance watching of one of his early works on Comedy Central: The Man Show. It was…not my cup of tea to put it mildly.

However, last week and the weeks previous back to when he talked about the birth of his baby son, Billy had me catching up with his monologue, at least on YouTube.

People, politicians mostly, got upset with him for moving out of his lane, comedy, forgetting that before he was a comedian he was a person. And as any parent knows, or should know, once you have kids, your parenthood comes first.

He spoke what was on his mind, made his priorities known, and most people agreed with him.

Then, they came for him.

The hypocrites.

And he did not crawl away, hurt, insulted, fearful of what his ratings might turn to, but he came back stronger, and he came back stronger because he had the truth on his side.

He spoke the truth.

He let his heart sit on his sleeve, and talked about what his family was going through, and reminded the hypocritical politicians that his isn’t the only family going through this scary time. They’re not even the only family with health insurance, but there are many more who don’t have adequate health insurance or any health insurance at all.

In fact, if you follow the news, you’ll have read, between the President’s golf game and berating the hard-working Mayor of San Juan, Puerto Rico, Congress ignored a key deadline and failed to reauthorize the CHIP, the children’s health care plan that has helped millions of children. Today, they wake up with no health insurance. What are they supposed to do?

No, Jimmy Kimmel isn’t an expert on health care, but he is an expert on what health insurance and health care provides for his family; for his children, andhe has every right in the world to speak about it, and if that shames Congress, well, they should be ashamed.

Here are some links to the CHP information in addition to more information about Jimmy Kimmel.

Jimmy Kimmel is just a person, just as we all are. There is something we can all do, but first we have to stand up.

Jimmy Kimmel
Official YouTube Channel
The Anger of Jimmy Kimmel (from The Atlantic)

The Washington Post article on the failure of Congress to reauthorize CHIP

Domestic Violence Should Not Be Politics as Usual

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​Sunday will be the sixth anniversary of my friend’s death. She was murdered by her ex while simply living her own life, washing a tea kettle out when he came up behind her and ended her life. For all of us who are touched by domestic violence and abuse, we ask if there was something we could have done, something we should have been aware of. I participated in my own share of victim blaming until I saw the larger picture of having your finances and only home tied up with someone who is threatening. 

I think we all like to believe the best of people, and if we’re wrong, we just pick up and walk away. Everyone has friends they can rely on, but how true is that really? Can a mom, the mom who seems to have all the problems, is never on time, offering flimsy excuses with the two kids, both in diapers – can she crash on your sofa or spare room indefinitely? Are you friends with her domestic partner? Who will you believe?

Domestic violence can happen to anyone, and it takes on a variety of forms. Some, though not many, don’t realize they’re abusive; it’s the way they were raised, and they think it’s “normal” to slap your wife and kids or grab her or slam doors and drink a little too much. Others seem like the perfect couple, family, etc, and no one knows what’s going on inside someone else’s home?

For B, my friend, when she had nowhere to live, she arranged to live in her house. Her house, that she paid for, contributed to the down payment of, was responsible on the deed for, but also on the property where her ex lived. I thought that was crazy. However, what else could she do?

He threatened her, but people say things they don’t mean all the time.

Why didn’t she call the police? Well, she did, several times. In fact, the police paid a visit to their house the night before she was murdered. They didn’t believe there was a problem; not a real one. Don’t set him off, though.

I didn’t understand.

Now, in Congress, in the House of Representatives yesterday, a bill was passed that will now go on to the Senate to be voted on. If it passes the Senate, I have no doubt that President Trump will sign it. He signs whatever he’s told to.

This new bill, that might become a law, which by the way also exempts members of Congress from its new rules and changes to the Affordable Care Act (ACA) as well as affecting private insurance and employer insurance along with Medicaid and Medicare, defines pre-existing conditions in horrific ways and will affect someone you know.

They say that pre-exisiting conditions will be covered, but that depends on the state you’re in, and legal access to health care doesn’t mean that everyone will have it or be able to afford it.

For example, four of the pre-existing conditions mentioned specifically are: domestic violence, sexual assault, c-section, and post-partum depression. What do these four things have in common? In addition to being completely and arbitrarily unpredictable and randomly occuring, they also only happen to women. The first two – domestic violence and sexual assault – are perpetuated by men onto women, but as is the case in many instances, women pay the brunt of the violence against them.

This is one of the most blatant and disgusting and obvious moments of victim-blaming.

They’re looking at getting rid of well visits and preventative care, maternity leave, and pre-natal care as well.

I’m appalled.

In today’s Congress, had my friend survived her gunshot to the head she would be blamed for it as a victim of domestic violence. It would be considered a pre-existing condition and not covered under the Republican’s repeal and regress health care plan.

They’ve had eight years to come up with something, and they’ve failed. However, they continue to punish women for their failure.

Do not let this Republican controlled Congress and White House continue to abuse women and their families.

If you or someone you know are in danger or in a domestic abuse relationship or situation, contact the The National Domestic Violence Hotline at 1-800-799-7233. They can help you and find resources for you wherever you are.

If you or someone you know are an LGBT+ youth and in an abusive situation, contact The Trevor Project at 1-866-488-7386. They can put you in touch with someone who can help you.

You are not alone.

Prompt – Childhood or Neighborhood Drug Store

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What was really great about this prompt when it was suggested in my reading group was how quickly everyone had something to say as a brainstorm. We weren’t sure this was enough of a topic, but after five minutes of all of us unintentionally spitballing, it was clear that we had a winner.

I believe my initial first draft was over one thousand words and when I go back to edit it for public sharing, there will be more memories that I will want to include and it will continue to grow orgnaically.

I’d love to see what you come up with.

Roe v. Wade (1973)

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Today is the 43rd anniversary  of the Roe v. Wade decision. That’s the decision that maintains a woman’s right to choose; to do with her body as she feels; It gives her privacy. It gives her autonomy. Many people herald it as a pro-abortion decision, but any of us who have contemplated abortion know that it is not. We know that no one, NO ONE, is pro-abortion.

Read about abortions before this landmark decision for some perspective.

As a country, we’re okay with the death penalty, even in cases where the convicted party is mentally disturbed – not the Charles Manson crazy, but developmental disabilities like Down’s Syndrome and mental ages that are well below their chronological age.

As a country, we’re okay with war; perpetual war since 2011.

As a country, we’re okay with torture.

We’re okay with domestic violence and victim-blaming where women are involved. Where men are involved, we reduce them to women.

We can’t even pass a VAWA that includes ALL women.

What is going on here?

I read something recently from someone who I respect, who is pro-life, who is a good-hearted, loving, peaceful person describing abortion (in some instances) as a convenience. Women don’t want to be inconvenienced. I strongly take issue with that way of thinking; that stereotype. Women who have abortions because of economic reasons are not doing it as a convenience. These women, for the most part are living in poverty. They have children and are often single parents. There is no universal child care option for them to get steady work or they work several jobs for part time hours. They are living in abusive situations that they can’t escape because they have no control over their own money and/or bodies.

Women would choose to avoid pregnancy rather than terminate it, but increasingly this option (birth control) is being taken away because corporations are people, too, my friend. The owner of Hobby Lobby is against contraception for religious reasons and chooses to force his employees to follow his religious beliefs instead of allowing them the freedom to follow their own religion.

The sooner the people in this country realize and accept that this country was founded on the principle of not only freedom of religion, the freedom to practice individual religions by individual people as well as, and in addition to the freedom to be free of religion entirely, the sooner these arguments will be null and void. We need to stop inflicting our beliefs on others. This country was founded on our differences; we should embrace them.

When my church does their prayer of the faithful, they almost always include a prayer for life, from conception to natural death. Very rarely, but sometimes, they reference abortion directly, and my mind invariably wanders and prays for the women; that they continue to have the freedom of choice; that they have the support, the autonomy, the health care and the reproductive rights that they should have in a free society.

We should be supporting women who choose abortions instead of terrorizing them.

The most recent act of terrorism in Colorado Springs that targeted the Planned Parenthood there killed a woman, not having an abortion, but supporting her friend, a man on his cell phone on the street, and a policeman/security personnel. This is horrible, and the fact that many of us hand-wave it away as collateral damage is more than a little disturbing.

The sooner we get back to our basics of bodily autonomy and religious freedom, the sooner we can move on as a country to more important things – stopping our military involvement, the quagmire, eliminating the gender gap in pay and rights, giving Americans the right to have access to health care that is actually healthy and affordable.

Women, when left to their own devices will make the right choices and the right choice is whatever they feel is right for them, not what you feel is right for them.

In all matters.

Medical I.D.s

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For those of you with “dumb” phones, you can also add a contact name, ICE (in case of emergency) and list who you want medical professionals to call. In the notes of that contact you can include allergies and medications as well as medical conditions.

In addition, I use an app called MediSafe that reminds me to take and keeps track of my medications.

You can find it in the Google Play Store or on iTunes.

Fry Meeks's avatarDo I Look Sick?

Happy July 4th everyone! On big holidays like this it’s important to stay safe. If you have a chronic illness, there’s another important step to take in addition to calling an uber if you’re drinking and making sure to wear sunscreen and stay hydrated- you should have a medical I.D.

Luckily it’s pretty easy to not leave home without one in this age of smartphones. In fact, if you have an iPhone, you already have one built in, you just need to fill it out.

Check out the app with the little heart. You’ve probably used it to check out how many steps you’ve taken in a day.

At the bottom of the screen, you’ll see the words Medical I.D.


It’s as simple as clicking it and filling in your information. Then your medical I.D. Can be viewed from the emergency mode by medical professionals even if the screen is…

View original post 84 more words

Rec – MediSafe App

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I’ve been using the MediSafe App for about six months. It is really genius. It helps me keep track of my medicine, when I take it, when I skip it (I sometimes skip the supplements, but never the prescriptions). It’s especially great if you take medication for chronic conditions and can also keep track of when you need refills.

You can also add a third party notifier, which is great for people with memory problems.

It will let you add doses for when you take Tylenol for a headache and that way keep track of ‘as needed’ medications.

It has other features that I haven’t even looked into yet because I was trying out the alarm function first.

I’m not sure how I managed my medication before this!

 

My First Anointing Mass

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Last week I attended my first Anointing Mass. I actually considered not going. My sick doesn’t seem as serious as other people’s sick. I have chronic health problems and a new one that has cropped up recently; something I need to think on, talk about, weigh pros and cons, and make decisions on, but because it has all of those steps it feels more like a business decision or planning a vacation rather than an illness.

I don’t know at what point I dismissed that as bullshit. That ridiculous my problems aren’t worth mentioning that so many of us do without thinking. We should not need to be beat over the head to take care of ourselves, both mentally and physically.

The anointing mass is for anyone who wants G-d’s help with whatever medical problem they’re having.

Even before I became as religious as I am now, I understood how important positive thinking is for health and curing illness. Studies have shown that even patients who didn’t know that they were being prayed for still did better than those that weren’t prayed for. Certainly, even non-believers can’t argue that prayer couldn’t hurt.

Still, it was very last minute that I decided to go. I needed to sign up since there would be lunch following the mass and they needed a head count.

Everyone I spoke to had told me how spiritual, how lovely, how beautiful this mass was. It hadn’t prepared me for the truly comforting feelings that the mass held and filled me with.

It was very similar to a Sunday Mass with the music ministry in attendance. However, we were seated in every other pew. People were helped to their seats so I ended up sitting with people I’d never met before. There were many elderly and wheelchair bound in attendance, several coming from the two nearby nursing homes and rehabilitation centers. There were many people from different parishes who come solely for this healing mass.

The Father went around the entire chapel and greeted everyone already sitting. He asked the woman next to me if they came with me to which we both replied, no, we’ve just met.

There were special readings that were incredibly moving. There wasn’t so much a homily as an encouragement to rely on G-d and to trust that all will be well. He quoted that from Julian of Norwich, and I found the simple words a necessary mantra for the rest of my week:

“All shall be well, and all shall be well, and all manner of thing shall be well”

It didn’t take long that I discovered why we were seated in alternating rows. That way, we didn’t need to leave our seats to receive the anointing and the Eucharist. It was a very kind gesture for so many of the attendees would have had trouble processing to the altar for the traditional communion.

First, one Father came through the aisle in front of us. He anointed our foreheads with the cross (similar to receiving ashes) and then also the palms of our hands. He spoke quietly and despite saying the same blessing to everyone, it sounded personal and more meaningful than I’d expected.

I didn’t feel better per se, although of course, I hadn’t expected to, but I did feel as if I’d received a shield; an additional protection, not only for the illness, but for the ability to make the decisions to move towards wellness.

After everyone was anointed and after the Eucharist was prepared, the second Father came to our side to give us the body of Christ with a Eucharistic minister following with the blood. I received a large pizza shaped piece and I carefully broke it, ate a piece, broke it again, ate a second piece, and placed the last piece on my tongue when I was offered the cup. I like to keep a bit of host in my mouth and swirl the wine with it. There’s no real reason for this – the host practically melts on your tongue, but I think, for me, there is something sacred about combining the body and blood and as it glides down my throat, there is a warm feeling. It is not a burning, but it remains and fades slowly as I meditate or pray while the host is replaced in the tabernacle.

After this, we all walked over the parish center together, steadying non-cane arms, pushing wheelchairs, holding doors open and lending a hand wherever needed. At first, I sat alone as I usually do when I know no one, but Anne Marie, the woman who was randomly put next to me for the mass came over and invited me to their table. I was glad for the company and even gladder that they were strangers. It made the day that much more distinct from the regular daily mass.

It was really a beautiful experience and if I need a boost of strength to carry on with my health decisions and getting well, I can think back on this day and reflect on it.

I have comfort in the prayers, in the fellowship of those of us joining together to combine our strengths and share them. It was very encouraging and I will rely on it in the upcoming months to support me in the trying times that are ahead.

My Recent Medical Scare (but it’s all good now)

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Recently, I had a cancer scare. I’ll preface by saying that I’m fine and in the end, they didn’t find anything, but on the way there, things were a little tense. When these big things happen, I tend to get quiet, listen, no thinking and okay a lot. I did it when I had my first child:

There seems to be a problem.

Okay.

We’re going to –

Okay.

That didn’t work. Emergency c-section.

Okay.

This is when my don’t question authority, your elders know better than you mindset kicks in. I think some of that is generational, but more than that it is growing up in polite-don’t-rock-the-boat society.

And so when a routine ob-gyn visit turned less than routine, I faced it with my usual aplomb. I told no one at first, not until the biopsy was scheduled and then I told my husband and my closest friend.

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